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Steve FeezorSteve Feezor from Valparaiso wrote on January 14, 2016 on 8:26 pm:
I am so thankful to find others like me. Up until 2 years ago I thought that I was the only person like this. 2 years ago I saw an episode on 20/20 and a woman that only ate fries and I cried to find out that I was not alone. I always hated to try to explain to people that I physically can not eat most food. They usually never believed me or just gave me a funny look. I always avoided family dinners, church, dinners, company dinners, etc... I feel like I have become anti-social but I am not. I am 60 years old but at least I have found others like me. Thank you. Embarrassing to say I am fighting back the tears. Thank you.
Admin Reply by: Bob
FYI I just sent a note to Amber about your finding out you are not alone during her appearance on 20/20. The only reason she did the show was so others could find out and stop suffering alone with our disorder.
Amber is also featured on the front page of this website doing a greeting to everyone.
PattyPatty from Fishers wrote on January 14, 2016 on 3:17 pm:
I am a very picky eater. Ever since I can remember. I always thought it was weird but there was nothing I could do about it. Like many of you. I get really nervous when faced with new foods. Don't get me wrong I think different foods smell wonderful and I always think if I didn't have what I have I would love to try them...but I just can't! People find it so weird and often times at social gatherings I really can never eat anything. Everyone will always ask, "would you like something to eat?", and I always reply that I am not hungry or not feeling well to avoid eating instead of explaining whatever it is I have. You would think by looking at me I would have no aversion to foods lol but I love bread and that is my downfall lol.
So, some of my eating habits...I don't eat yellow foods. Nothing mixes, everything is plain. Plain hamburger, plain, plain spaghetti, no sauces of any kinds, plain potatoes, I only drink water, only vanilla ice cream, plain chips. My shopping list is very limited.
I remember growing up that my mom had to make me a separate supper supper when it was made.
I now have 2 children. My daughter is perfectly fine with food, but my son is just like me. I don't want him to be because I don't want him to go through what I go through. I want him to experience all the world has to offer with food. I don't want him to be an outcast at social gatherings. I usually have to make two different meals at supper time. One for my daughter and boyfriend and one for me and my son. I get scared that he isn't getting the nutrition his body needs. I hope it is just a phase for him, but from the looks of it, I am afraid it is not.

People just do not understand what I go through. They always say you can just try foods! It's hard to explain that no I can't! I will immediately start gagging, vomitting, or have some other physical reaction.

It's nice to find a community where I am not weird.
Admin Reply by: Bob
We have heard of lots of people with our disorder that have children that eat normal and some that eat just like them. In your case it would appear one of your children has gotten it through the genes.
Bob K
MaddieMaddie wrote on January 12, 2016 on 4:30 am:
I've been trying to add new foods to the list of what I can comfortably eat. I seem to reject some foods based on sight or smell alone. For example, I enjoy some strawberry flavored things, but actual strawberries have such an overpowering scent that I can't really get close enough to try one. As far as what I have successfully tried goes, it's odd. I've tried pasta with marinara sauce multiple times, since I like pasta to begin with, but it never seems to grow on me. On the other hand, I tried fried calamari, which is far from my normal comfort zone, and it was fine. Why on earth would my mouth consistently reject things like peas and carrots (which I used to eat when I was a toddler), but then be totally okay with squid meat?!? I'm convinced that if I went to try eating a scorpion and a normal salad, the taste part of my brain would gag at the salad and happily accept the scorpion. If any of you want to expand your food horizons, maybe you should try something that normal people tend to view as unappetizing.
MeghanMeghan from Ann Arbor MI wrote on January 7, 2016 on 2:54 am:
I have to say, it is such a relief to know I'm not crazy! My parents and my boyfriend are the only ones who don't think I'm a complete nutcase. I've tried to try vegetables in the past, but I just gag on them. The smells, tastes, textures, and colors are just so unappealing. And it can be so embarrassing, especially when you meet new people. My closest friends are some of the most patient people. They put up with me wanting to just go get pizza-again. I don't like to try new things. I WANT to try them, but i am always disappointed. Because my boyfriend and I are in such a good place (and thinking about babies!), I'm worried about my selfish eating habits. What if eating this way during a pregnancy can cause serious issues for a child? I wouldn't be able to forgive myself. In the meantime, I'm glad I found this website. It's such a comfort!
Admin Reply by: Bob
We have heard from lots of women who have had very healthy children inspite of the way they eat. The baby will get what it needs. On caution is that we believe that what we have can be transmited through the genes. We have lots of examples of children eating normal with no problems and then we also have lots examples of children who appear to have it from birth just as their parent did. As Marla if you join our group. She has two children and one eats everything and the other is worse than she is. Hope this helps you. If your thinking of marrage your prospective spouse should have any ideas that he can change you.
SarahSarah from Kansas City wrote on January 5, 2016 on 8:19 pm:
It is a great relief to find that I am not alone. It was luck that I found this site that does not judge me for something I cannot control. A friend on Facebook happened to post a link about picky eating being a disorder, it seemed to be my calling. As I read it, I finally discovered the name of what has plagued me ever since I could remember: Selective Eating Disorder. It is disappointing to know that not much is known about it, yet there is still research going on. I have seen at least four different therapists who have tried to help me, but to no avail. Gatherings with friends or family create extreme anxiety due to food being a main source of social functions. I consistently go out to restaurants having checked the menu online to make sure they serve something for me. I have told a select few of my close friends about it (each resulting in tears for me) with a sort of judgmental response. I have always felt ashamed and embarrassed by my lack of variety. As a 20 year old, I love being in college in a different state meeting new people; however, next semester all of my friends are going abroad to Europe leaving me behind. I would be lying if I said that food was not the main reason I won't be going abroad. It is because of the unfamiliarity of cuisine. I hate feeling left out and feeling like a child who is too selfish and stubborn to just taste/try something. My diet is limited to some fruits, chicken, peanut butter, bread, french fries, waffles, cheese pizza (preferably without sauce), and a plain burger. I will admit to having tried a few things in the past few years including eggs and salads, but have not been consistently part of my eating habits yet. And trying those things was very stressful. Aversion of food is my main struggle in life that makes me feel guilty for maintaining. I wish I knew how to cook and prepare something. I wish I was able to expand my habits and see what I am missing out on. And I especially wish I did not avoid spending time with friends or family because of this phobia. I am happy to find a community that accepts me and can help me. Thank you very much.
ArielAriel wrote on January 5, 2016 on 6:24 pm:
I've struggled with picky eating my whole life. My doctor said I would grow out of it but I'm now 24 and I never grew out of it. I've had people be super rude to me and tell me that I should just get over it (if only it were that simple). I've also had people be very understanding and helpful. I've slowly but surely added certain things into my diet but it's still hard to deal with. I'm seeing a therapist to try and help me. I'm just glad to know I'm not alone and that there are other people out there just like me.
Julie DaraJulie Dara from Marlboro wrote on January 4, 2016 on 4:30 pm:
My friends and family think I am absolutely crazy. My sister is always convincing my parents to take us to fancy restaurants--places others only dream of going. I grew up in an upper middle-class family, and even though we have the funds to go to these type of places, I beg them to let me eat chipotle (the tofu of course) or get a slice of pizza and just keep them company during the meal. I am such a picky eater that it literally gives me anxiety when deciding what/when my next meal will be. I can live off pizza and bagels everyday if given the option. Dinner is my least favorite meal because most dinner foods I don't like. I literally get anxiety when thinking about what to eat because I eat the same things and often get sick of those things. Not only that, but I also know that I don't eat the healthiest diet but I can't do much about it. As I get older, I feel it gets worse and worse. As a child I used to eat red meat, but early in high school I cut it out of my diet because it would make me nauseous and gag. It is so frustrating but truly heart warming to know that I am not alone. It is sites like this that can help others to understand that I'm not that weird and crazy, and I'm not the only person in the world this way. I wish I ate everything, to be honest, it would make my life A LOT easier, but unfortunately it isn't a choice for me.
AnnaAnna wrote on January 4, 2016 on 4:35 am:
Hi there! Here to read more about this because my boyfriend unfortunately suffers from this. It makes me so sad that so many other people suffer from this. He hates food, he wishes he could just take a pill and be full. I've been scouring the Internet because I'd like to make dinner from him sometimes, but I'm afraid to surprise him with anything other than hamburgers (plain), cheesesteaks, and pizza. I've noticed that there's no one right answer, since everyone is different. I know he's worried about his health as he gets older, but I don't know how to help him without insulting or disgusting him. If anyone has advice please reach out. Positive note: we went to a Mexican restaurant recently (he insisted he wanted to go there ... Found out later only because he knew I loved that place) and he tried tacos (he doesn't like spicy things and basically got them plain) and after eating them he told me he was glad he tried it and that he enjoyed it! Progress? Again, I don't know how to approach these things without sounding like I want to "fix" him. I just want to help.
JordanJordan wrote on January 3, 2016 on 8:23 am:
I'll start off by saying I'm shocked I don't have feathers by how many chicken fingers I've ate. I'm 22 and work with only women in a spa. You can imagine the looks I get at lunch time when I'm eating dinner rolls and granola bars. I wish I could push this page in their face and say "SEE! I'm not the crazy person you think I am!" My worst stories include

1. in college when a girl found out and put an orange peel on my leg as a joke to see me have a complete 2 year old meltdown over it. I went into full hysterics as if someone put a severed finger in my lap.

2. Being told I wasn't invited to a friends wedding because she wouldn't have anything on the menu I would like to eat. As if that's a problem.

I'm like everyone else, I won't go to dinner gatherings with people, and am so thankful of the few family members who have FINALLY understood this isn't a choice, it's a curse, and no longer push foods into my plate (because let's face it, the second it touches another item, it's all contaminated). This page is the best blessing I've found.
Sydney RoseSydney Rose from Yuma AZ wrote on December 28, 2015 on 3:50 am:
When I was little my mother gave up cooking for me because I wouldn't eat anything unless it was exactly what I was craving. I was very tiny and so she took me to the Dr. who said to leave me alone and that I would eat when I was hungry. I'm 22 now and I never grew out of this. I'm 5'3 and weigh 95 pounds. People have often questioned if I am anorectic or bulimic but I knew it was something else. I typed in "picky eating adult" in google and found the term selective eating disorder and knew immediately I fit the bill. I've seen many clinicians over the years and wish someone would have told me this because now I know I'm not alone. It pains me because I can rarely eat socially and when I try to force myself to eat something I don't want I will gag and throw up. I have to take a multi vitamin because I don't eat enough. My loved ones around me don't understand. The hunger hurts and contributes to my mental and physical health conditions and I just wish I could be normal.
Mary BurnamMary Burnam from Snellville wrote on December 26, 2015 on 3:20 am:
My name is Mary and I am 17, soon to be 18. I have struggled with being a picky eater my entire life. From the time I was 2 or 3, I refused to eat anything that was not covered in cinnamon. For the next decade, I only ate chicken nuggets. I could only stomach certain brands and certain fast food places. During these years, my mom attempted to feed me any possible food she could. I would sit there refusing to eat until the food was cold. Eventually after an hour or two, my mom would give up and I would run upstairs. Trying new foods makes me gag. I hate the textures and smells of new foods. Once I turned 13, my next food obsession was grilled cheese. Now, I have slowly allowed cheese pizza into my diet, but unfortunately I can only eat it if it has no sauce. I am very frustrated not being able to eat correctly and people act as though I just have to try new foods. They don't understand that it is not that simple. This is a constant mental game I have been playing all my life. It is extremely frustrated because my diet consists of carbs, cheese, and sugars. I know my body can metabolize these foods now, but eventually these foods will destroy my weight. I am deathly allergic to all nuts and this too has affected my diet. I imagine that I have SED, as well as sensory processing disorder because my sense of smell, touch, and taste are heightened. I do not know what to do to fix this because the idea of trying new foods makes me gag.
NicoleNicole from Columbus wrote on December 23, 2015 on 10:31 pm:
What a wonderful feeling to find others who share this same affliction! I am here on behalf of my 14 year old son. He suffers from SED and it makes his life uncomfortable, to say the least! Friends parties, social gatherings, sleepovers, all a total anxiety filled nightmare! He would give anything to eat normally, he even asked me last year if it was possible to be hypnotized. It just broke my heart. We have tried therapy for him, but with no results. I can't tell you how many years my husband and I have anguished over him and this condition. Simple things people take for granted, like family vacations, Thanksgiving dinners, classroom parties, overnight camps, etc.... all not possible without serious anxiety attacks. I am hoping to connect with others to find maybe some ideas we can implement to make his life better for him. It's heartbreaking for me to think about his life in the future. I just can't imagine a wife that would want to make him macaroni and cheese every night for dinner.....
Admin Reply by: Bob
Dear Nicole
You describe the things we deal with as we go through life. I have had so much stress in my life because of my picky eating disorder. Sorry to hear people are still being born with it. You are welcome to join our Yahoo support group. We have lots of parents in the group who have joined us as a last resort. Please know that Hypnosis is not any real help. Your son can still have a great life even if he never learns to eat anything new. Actually he is lucky in the fact that he will not have to live his life thinking he is the only one. I did until I was about 58. That's why I started and continue to maintain this website. Hopefully someday our disorder well be better understood. Bob K
KristinaKristina from Burlington wrote on December 22, 2015 on 10:10 pm:
I just posted but then read other people's stories. It is comforting to know other people get it.
I found it ironic that the acronym for the site spells Peas. I thought, "Peas... the very food that lingered on my plate as a child while I sat at the dinner tabld long after everyone else had cleared there plates. Eventually my mom would either give in or my dad claimed I was being dramatic I gagged while washing them down with a glass of chocolate milk.
I enjoy going out and socializing, but hate coming up with reasons as to why I'm only ordering fries or skipping to dessert. I know it's become a game for others to giggle at; naming foods to see what Kristina likes. I want to be able to pop a grape in my mouth, take a swig of beer, enjoy a foreign dish. .. but I can't. It's good to know I am not alone .
KristinaKristina from Burlington wrote on December 22, 2015 on 9:53 pm:
I have always been a picky eater! My food palate is comparable to a child's. I have always wanted to travel out of the country, but my fear of what week I eat keeps me from fulfilling that dream. My friends are often accommodating; My boyfriend (along with those I've dated in the past) find it frustrating. I am an awesome person, just limited with my food choices.
CharlesCharles wrote on December 22, 2015 on 1:00 am:
Story 1: I took my then girlfriend for a pricey dinner one New Year's Eve. When we got there, it was a Prix Fixe menu. Not a single thing on the menu I could choke down if I wanted to. i did what any grown man would do under the circumstances. I burst into tears. Cut to: me in the kitchen with the chef saying, "Well, what DO you eat?"

Story 2: A friend was having a dinner party. I declined the invitation. She pressed it and I confessed my eating problems. She asked, "what would you be having for dinner by yourself?" I said, "a peanut butter and jelly sandwich." She insisted I come. When I got there, everyone is eating - on my plate were triangles of peanut butter and jelly sandwiches adorned with festive toothpicks.

Unfortunately, she made the sandwiches with strawberry jelly...

As you can imagine, there are many more stories.
AnouschkaAnouschka from Paramaribo, Suriname wrote on December 21, 2015 on 4:35 am:
Hi, I'm very surprised to find a website, this one, where there are stories similar or just like mine. I'm a 28 year non working woman from Suriname, a country in South America. I'll come to the why the non working part. I hope my English is good enough to write my story. I come from a country where dutch is a native language.
I always have been a picky eater, I never could figure out why and neither could my family. I'm not as lucky as some of the others have been with supporting family and perhaps friends but I'm in a better place with my food problems with myself at least.
My mother told me I was a picky eater since birth, I wasn't breastfed because I refused. I was a very healthy baby but I did needed food so they tried with milk, but I was picky even in that. I think I have a problem with certain smells and tastes. I only accepted one kind of milk and so they started me on that. I never had a health problem as a child but I never ate healthy. Like I said picky eater. I can't eat vegetables, certain meats, fish, certain spices, certain fruits and even certain junk foods. My diet when I was child consisted mostly the same everyday, chicken, rice, perhaps eggs (egg whites make me nauseous). When I discovered potatoes, I added that to my diet. Most of the foods always made me nauseous and after nausea usually the throw ups would start. As a child I was force fed a lot of times, it usually didn't help but did make me scared of eating. So as a child I started hating foods, mostly because I hated throwing up (was and is still very painful).Over the years, when I arrived in my teens, I discovered potatoes and fries that was something I could eat without throwing up so I put my foot down against my family and started to stop being force fed or even manipulated into eating something that would make me throw up. I know they mean well, cause if you don't get the nutrients you need you could end up with a lot of health problems. But after years being commented on that I'm just being picky I need to eat vegetables and other things, I stopped caring and started eating what I wanted. It mostly involved fries and since no one was supportive I usually ended up making my own fries. So naturally I was a chubby teen and a chubby young adult.
I searched for years what kind of problem I could have but couldn't find the answer to that question or people like me. Even the doctors couldn't help me so I stopped searching for answers and tried to come to terms with the limitations I had with food. It took me a couple of years but it work I could train myself to eat certain foods, to watch others eat something I would not and tried not to let others know why. I usually don't eat in restaurants or other places and if I do have to than I choose one where they have fries. When anyone why not something else I just say that it's my favorite food and they usually don't make anymore comments on my food choices. Since I don't drink alcohol my excuse works. Only my family and very close friends know about my food problems. When I turned 25 I started having health problems, more so in my feet, fluid retention. The doctors couldn't find out why, they tried everything but nothing would help. So some said perhaps I should lose some weight, maybe that would help. I was chubby but not overweight. Dieting was a big problem for me because I usually only ate potatoes but I tried and it didn't help.
For two years I had big feet, I couldn't complete my studies cause I couldn't wear work shoes in the lab (I was studying for chemical analyst) and since work shoes is the number one requirement I gave up. I thought I could take a break for a year or two and concentrate on getting better. I never did. I got worse. Till this date I have come from fluid retention to having rheumatism and other system auto-immune diseases. But the exact disease or cause they don't know yet. I'm 28 years now and I can't walk anymore. I don't know if my food problems or the reason for my health problems or not but this my story. I did found out a few years ago that I have hyperactive gagging reflex, one of the reasons of throwing up food but it doesn't explain why it happens only with certain foods and spices.
MichelleMichelle from Vancover BC wrote on December 21, 2015 on 4:18 am:
This has been truly an eye-opener... I've been ridiculed, harassed and judged for years on my selective eating. I even went to school to become a Nutrition Coach and Personal Trainer and still have these issues. I'm 24 years old and always got treated like I was a problem. Other family members birthdays got revolved around my eating habits, people ganging up on me just to try something new till I emotionally and physically got sick. All Doctors tell me is exactly what I already know.... Eat healthy this and Healthy that... Great... Anyone looking in a Nutrition book knows what they should be eating, but someone who's never tried almonds, nuts or seeds with SED might take years to even attempt to try. I'm tired of being singled out and reading all these posts make me relieved. This being said I wish there was a cure to make this all go away. I still remember wishing I had no taste buds as a child, youth and adult so I could live a better life.
Admin Reply by: Bob
While I'm one of the pickiest of the picky. For some strange reason I love lots of different nuts. Peanuts, cashews,walnuts,Pecans and almonds are a favorites. I eat then raw, smoked and roasted. I would be willing to bet you might like the raw almond. Not much taste and nothing nasty inside. Plus Almonds are suppose to be good for you. One of the few good for me foods I eat. So if you happen to like any of the other nuts I eat you might like the Almond. But I will never say on this forum. "If only you would try it I know you would love it." That just does not work with us. We are all the same and then we are all so different. Glad you found us.
KellyKelly from NYC wrote on December 12, 2015 on 7:59 pm:
I am so surprised to see that this site exists and that this many people feel the way I do. I am a 24 year old from NYC, so thankfully being vegan or vegetarian is quite common and I can always find something to eat around here. My diet is mainly eggs, buckwheat, cereal, cucumber, avocado, rice, seaweed, ice cream, hamburgers (plain with no bun, extra sauce, and MUST be well done), and a few other items. I have recently started branching out more because my very supportive boyfriend of 4 years is (slowly) but surely trying to help me eat new foods. Sometimes I feel he may be pushy, but it is only because he loves me and he wants me to be able to have a well rounded healthy diet. I can definitely understand this, as his grandma who has similar eating habits to me is having health problems at her old age because of the way she has been eating her whole life. My mother always said the reason I don't eat meat is because a childhood friend's mother showed me a video of slaughter houses and terrible conditions in them. I am not sure if this is true or not, but I am always scared to try meat, even if I sometimes feel I like chicken nuggets I can't get over the fact of eating a dead animal. I can't even touch raw fish or raw ham etc… I feel so bad about this and I hate not being able to cook for my BF the way I would like to because I can't taste the food as I make it for him and I don't know how to experiment with different recipes. I myself would love to try the new foods but once I have that piece of fish or steak in front of me I cannot physically pick up the food and put it in my mouth. I also have a thing with the texture of the food, if I don't agree with it and I still like how it tastes I won't eat it. I always tell myself today will be the day you try something new, but it rarely happens that way. I am going to a sushi dinner on Monday, so hopefully I will try something new! I want to do this not only for my boyfriend but mainly for myself. Especially when I have kids in the future I do not want to set this kind of example for them. If anyone has any tips on ways to feel better and constantly keep trying new feeds, PLEASE let me know. :) I thought I was alone in this, but it turns out there are many of us! hopefully we can all overcome any obstacles we feel are in our way. Happy Holiday's everyone, and remember to pack a little side snack for your holiday dinner 😉 I know I always do..
DarcyDarcy from Philadelphia wrote on December 10, 2015 on 3:56 pm:
After recently doing some online research, I read about Selective Eating Disorder and I believe I have SED. Like most of us here, my parents and I thought it was a childhood habit or a strange unique quirk I just never grew out of! I had never met anyone like me before and have felt so alone with it most of my life. It's incredibly healing and powerful to read everyone's stories so thank you all for sharing! We really aren't alone, and there is nothing wrong with us. For whatever reason, this is just a set back we were born with, and hopefully together we can help each other deal with it better in our own lives. I'll share a bit of my story in the hopes of adding to all of yours! I just turned 21 yesterday, and after all that time I was finally motivated to research what was going on with my extreme levels of picky eating during this past semester (I'm a junior in college) studying abroad in China. I came to China because I am studying Chinese language and culture for my future career. It was a wonderful decision for my education and personal interests, but Chinese food includes very very few of my safe foods. I am a vegetarian (used to eat bacon and pepperoni only, but eventually decided to give them up although I love the taste to become a full vegetarian as I am also grossed out by the idea of eating dead animals), and on top of that I only eat certain fruits and vegetables uncooked and without dressing, cheese pizza, fries, plain pasta with only certain kinds of sauces or butter, eggs or tofu but only prepared in particular ways, some Western breakfast foods like pancakes or cereal or oatmeal, lots of dairy products like yogurt and cheese, and some desserts. I won't eat the vast majority of menu items in your average American restaurant because like most of us I have a lot of specific preferences even for my safe foods, so at a Chinese restaurant you can forget about it. I usually use the full extent of my Chinese language capabilities to explain that I literally want noodles without soup or veggies or meat, which is very hard for Chinese waiters to wrap their heads around. Or I go the simple route and only eat a plain bowl of white rice... which for me isn't very filling or satisfying as a whole meal. The hardest part hasn't just been finding food I feel comfortable eating in China, but also finding social acceptance. Unlike some of us, I have been extremely lucky to have a family that has been incredibly supportive without being enabling in an unhealthy way of my food preferences. My friends in high school and college and current boyfriend of three years are also all very accepting - they sometimes tease or make jokes but ultimately try to understand and respect me as I am. However, in my study abroad program in China, I am very frequently in social situations with lots of other students who aren't friends of mine at Chinese restaurants where my diet is very very publicly displayed - and of course, noticed and picked apart by other students. At first I can try to cover it up as "I'm just a vegetarian," but it quickly shows that there's much more going on when everyone tries to help by pointing out lots of vegetarian dishes and realizes that I don't want to eat any of those either. People in the program have been gossiping and misunderstanding my diet a lot, and I suspect that it was one reason I wasn't able to maintain the first group of friends I was a part of during the semester. Luckily, I found a new group who were much more understanding and not at all bothered by my diet, but it was still very difficult to face all the social pressure and public conversations from strangers my age about my eating habits where I knew that they really were judging me. In reading others' stories, I have seen that one of the most common threads among us is that many are afraid to eat around other people - especially as we get older and have to maintain a more "normal" and professional appearance - and will do anything to avoid those situations. I am a very outgoing and extroverted person, so I have always tried to be relatively open about my eating habits with strangers even when it feels extremely embarrassing or difficult to be honest about. I often cope by making fun of myself in front of new acquaintances to make my diet seem more acceptable through humor and an ice-breaker topic rather than something to cover up completely. But the reality is that it's just another coping mechanism like avoiding eating with people at all, and sometimes those self-effacing strategies and attempts at humor still don't work. Because just as people can be ignorant or insensitive about race, religion, disabilities, one's body type, or other characteristics that distinguish people from each other, there will always be people who do not understand that our way of eating is not some casual choice or a lack of maturity. Trying new foods for some of us is terrifying and sometimes seems impossible - and that is a very real thing. We are all doing the best we can for our health and our lives, and our happiness is also very important within that! Never forget that you are wonderful, and so much more than what you feel comfortable eating and so much more than what anyone may choose to think of you! For me, talking to and hearing from all of you has already made such a big difference just in the past two weeks of discovering this community. So thank you! Keep sharing and keep loving yourself :)
Admin Reply by: Bob
We are so very glad we have been able to help you. We are also glad you are here with us now to share stories about your life.

Bob K
JustinJustin wrote on December 6, 2015 on 9:24 am:
I've heard of other people with this disorder. Somebody's cousin or a friend of a friend. I've never talked with anyone else who has it though so I'm curious to join the online community. I'm 23 and I'm in my first year of grad school working for a Ph.D. in psychology. I was a bit chubby in high school and the beginning of college, but I started eating things that were in my food range, but that were healthier and I started working out pretty regularly so I now feel like I'm adequately in shape. I'm lucky to not be as extreme as some others on here, but I have similar experiences. Eating at summer camp was a nightmare. If I'm in a place where I can't get my safe foods I'll starve. I lost about 10 pounds in 8 days one time. I've always felt like I had this big secret I had to hide that no one could know about, but it was just awful because if you're around people long enough, eventually they find out. You can't really hide this. Luckily I can eat fruit, I love fruit actually, berries are one of my favorites, but they're difficult to get in the winter. I do cheese bread (no tomato sauce), some nuts, hotdogs, scrambled eggs, then most of the stuff that is more typical for people with SED. Peanut butter is my go to though, it gets me through life. A few things have happened recently that would be nice to talk about and they've made me look around for some answers. 1. I am so thankful that this is now in the DSM, it feels so much better to be able to tell people this is a real thing and that I'm not a freak or choosing to be this way. 2. This has always been a great source of shame for me, but I just wouldn't go on dinner dates or relatives/friends parents thought I was weird, nothing too awful, but now I'm in graduate school where I'm expected to go out for lunches and dinners with people and it's affecting my professional life and I'm just starting in this program. I want to try and act like an adult. 3. Reading that no one has ever really overcome this. I don't know if that's true, but it would make sense to me. I don't understand how I could fix this. Sure I could branch out a little, try some new things, be able to stomach them, but it would never be routine and I'd never be able to branch out that far. 4. I have depression and anxiety. Recently I'm wondering if food is at the core of both those issues. I'm always tired and I think if I could get the right supplements and modify my diet a little then maybe I would have more energy. 5. I visited a friend outside of Chicago a few months ago. We went out to dinner with his brother and one of his coworkers. I'm used to going out to dinners with people and explaining, I typically don't mind. My friend and his brother knew, but the coworker started asking questions, then more questions, and he started getting rude with it. At one point he pulled out his phone and started taking pictures so he could send shots to his friends of the kid who would die from heart failure by 28. He was a loser, but it still hurt a lot to be attacked like that. Felt shame at first then a lot of pent up anger. About an hour later he brought it up again and I immediately started unloading on him. Eating has never been enjoyable for me, I do it because I have to. But it'd be nice to feel comfortable in my own skin and not hate myself because of this condition
Admin Reply by: Bob
Dear Justin I do hope you join our Yahoo support group. I think we can help you feel better about yourself. While cures seem to be few it is possible to learn to tolerate new things that might help you in your professional life. That doesn't mean you will learn to love new foods. You will be able to look more normal in formal dining events. The sound of clanking dishes at a banquet tend to give me the creeps. It is also funny how many people that have what we have are gifted in other ways. So it's not all bad. Take Warren Buffet he likes to live on candy and 5 cokes a day.